Blog
Start Here
Parenting
Emotional Disorders
Developmental
Physical
Therapies
Special Education
Activities
Book Store
More Information
My Story
Contact Us
Resources

[?] Subscribe To This Site

XML RSS
Add to Google
Add to My Yahoo!
Add to My MSN
Add to Newsgator
Subscribe with Bloglines

Parenting Advice for Raising Special Kids

How do you find parenting advice for this situation?

The doctor comes in and gives you the diagnosis that confirms your child has a disability and you are now raising special kids. Your stomach draws into a tight knot and your heart is slamming into your chest.

Even though you always felt there was something wrong, you still have that "the bottom just dropped out of my world" feeling that sits like ice in your gut. What are you supposed to do now?

Or perhaps you have been fighting for years to get someone to listen to you and help your child. You know there is something wrong, but doctors, therapists, teachers, and social workers all blame you, or tell you your child just needs to try harder or "they will grow out of it" and suggest that you get therapy for yourself.

Is it my fault? Why do I feel so guilty? How am I going to deal with this?

How do you avoid the years of blindly stumbling around in the dark trying to find a way to help your child?

Do you feel alone and helpless trying to get help for your special needs child? Are you lost in the maze of a complicated and overwhelming system?

Is raising your special kid a complete mystery? Is your house and life a chaotic mess? Don't you know which way to go or who to ask for help? Don't even know WHAT help to ask for?

Do you need parenting advice for raising special kids?

You Are Not Alone

I have been there. Right there, in your very shoes. It literally took years of fighting battles everyday before I managed to learn enough to even ask questions. Since those stumbling beginnings, I have been an advocate and peer support for parents raising special kids who are challenged by emotional, behavioral, or mood type disorders. This site is about my own experiences and what I have learned helping other families with parenting advice about raising their own special kids.

When you learn that your child has a disability or a chronic illness, it starts a lifelong journey that can be a roller coaster ride of emotions, filled with tough choices, dealing with a bunch of different professionals and specialists, and a constant search for information and services. The isolation and loneliness you feel is heightened by your lack of knowledge. Your search for parenting advice, information, assistance, understanding, and support begins here.

What This is All About

I created this site with the hope that I can help even one person not have to go through the same things that we did. This is the site I wish I'd had when we first knew there was something very special about our daughter.

I needed parenting advice badly then, so if you are raising special kids and you are in that spot now, then this is the place to start. No, there is no magic and there is no instant fix, but through knowledge, experience, dedication, a little parenting advice and a lot of love and support, you can do this.

A Little About Us

I am raising four special kids - all girls.

Cosette just turned 15 this summer and has both bipolar and autism. She also has asthma and numerous food allergies, sensory integration and digestive issues.

Brianna is 10 and takes medication to keep her asthma under control, and is on medication for anxiety and depression.

Anielei was hospitalized at four months old for failure to thrive. She could NOT eat anything, until we found the elemental formula Neocate. Through many doctors across several states until we made it to Cincinnati Children's Hospital and Dr. Putnam told us she has Eosinophilic Gastroenteritis. She is 5 now.

And little Aja Marie is 4 and also on Neocate for most of her nutritional needs. She also gets speech therapy and has orthopedic braces to help her feet so she can walk properly. She has sensory integration dysfunction, reflux, numerous allergies, and an as-yet-unconfirmed Eosinophilic Esophagitis or EE. She finished up with Occupational Therapy and Physical Therapy just a few months ago.

My Princesses

They are all princesses and fill my life more than I ever imagined was even possible. The lessons that each one has taught me on raising special kids are included here as parenting advice with the hope that you will not have to fight and struggle each day just to try to help your child. My own family covers physical, emotional, and developmental disabilities, so we have had to deal with all of it. You can read more about them throughout this website, or visit www.anielierose.org

Tell Us What Is On Your Mind!

I am always looking for feedback, comments, ideas, suggestions, and stories that give you what you need by providing practical parenting advice and information that you can actually use. Please feel free to send me your feedback and tell me about your experience raising special kids! Just click on the Contact Us tab and fill out the form.

Raising Special Kids Blog
Follow a father's journey from clueless to advocate with four very special girls. Get updated information on parenting special needs, disabilities, therapies, special education

Start Here
For information from a parents perspective, start here when your child has been diagnosed with a physical, emotional, or developmental disability.

Parenting Tips
Is there a secret to parenting special needs children? Where can you find some down-to-earth parenting tips for raising special kids? Start here for practical parenting advice on parenting special needs children.

Emotional Disorders
Emotional disorders is not exactly a medically accurate term, but is generally used to describe disorders that primarily affect behavior, moods, and emotions.

Developmental Disability
Start here to find information to help your child with a developmental disability

Physical Disability
The search for information on a Physical Disability can be confusing, but here we will try to pull things together and make it understandable.

Therapy
Information on the different types of therapy and alternatives available for your special kid.

Special Education
Find out how to use the special education laws to help your child succeed. Basic rights, planning, record keeping, problem solving, inclusion, communication, transition, and IEP.

Autism Spectrum Disorder
Autism Spectrum Disorder, or ASD, affects 1 in 150 people in America today. Find out more about this developmental disability that falls under the umbrella of Pervasive Development Disorder, or PDD.

Activities with Special Needs Children
Where do you find activities for you and your special kid? Here are some ideas and places to look for things to do.

Child Anxiety
Child Anxiety can be just as disabling as adult anxiety. Get the information here to help you identify and find the right help for your child.

OCD in Children
OCD, or Obsessive Compulsive Disorder, is an anxiety disorder that affects as many as one in one hundred children. Find out what to look for and how to help your child with OCD.

Person Centered Planning
Person Centered Planning is the core concept in treatment plans across the nation. Find out what PCP or Person Centered Planning is and why you need to know about it.

Section 504 and IEP Differences
What is the difference between an IEP and a Section 504 plan? Find out how they are different and how you can use that to help your child.

Cognitive Behavioral Therapies
What are Cognitive Behavioral Therapies? Find the answers here and how CBT might be able to help you or your child.

Finding a CBT Therapist
How do you find a CBT Therapist to work with your child? Here is a step-by-step plan to finding a therapist that is right for you.

Organizing Records
How to Organize Your Child’s Records. Organizing Records and making a useful Master File out of the mountain of your child's paperwork.

Special needs camps
Learn about the different types of special needs camps, what to look for, where to find them, and things to take into consideration. Special needs or inclusionary summer camps? Get the information to

Ready for Camp
Getting your special needs child ready for camp. What can you do to help you and your child be prepared for a residential, inclusionary or special needs camps? Here are things to consider.

Raising Special Kids Book Store
I am bringing to you here the opportunity to browse through books of interest that may have value to your unique circumstances. I have found many of these books very helpful or have heard good things about them from families or people I have worked with in the past. I am pleased to be able to bring you my own book store

More Information
More information about the topics on this website are included in the links here, as well as links to my other sites, my friends'sites, and recommended sites that I think will help you or be of interest.

My Story
This is my story about how I began raising special kids and how this website came to be. This is how SBI helped my family move to another level, and how you can too.

Contact Us
Contact Us using this convenient form. We want to hear from you!

Special Needs Resources
The Challenge of Finding Special Needs Resources. The one thing I have had the most difficulty with over the years that I have been “in the system” is to find out exactly what services and resources are available and how to get them.


footer for parenting advice page